Kaaren Beuth

As a sufferer of IBM myself, when I stumbled upon this movie I just had to watch it. Stu was unlucky (or not) with his journey along the IBM track.. to be diagnosed so young then to die so young was definitely a cruel blow. Inclusion Body Myositis is still a rare disease. Muscle atrophy. It is good to see a movie made about a person with this disease which increases the awarenes of this disease. I was diagnosed in 2014 at age 54.