Our grandson had Batten he lived to be 21 years old. He lost his eyesight around 7. It is a horrible disease on the person and the family. My daughter and the family struggle everyday with remembering all the pain. God Bless these children and their brave families โค๏ธโ๏ธโค๏ธโ๏ธโค๏ธโ๏ธ
