Christina Kolassa

I have 2 children with Cystic Fibrosis (my son's name is Will which made watching this pretty hard.) I thought they did a very good job of portraying the characters. But there were two areas where I questioned their portrayal. First was how abruptly Poe died. CF doesn't happen like that. Secondly, the CFer's barely coughed during the movie. Kids with CF that are nearing death cough A LOT!! If they had made Poe's character cough more, his death wouldn't have felt so sudden. When Will had to decide whether or not to give Stella mouth to mouth after she fell, I almost couldn't breath because I was crying so hard! And I felt extreme sadness to hear that the character, Will's, treatment wasn't working. That is one of the hardest parts of the story in my opinion. We are very fortunate to be enrolled in a clinical trial of a new CF drug (VX-445 from Vertex) that is making a HUGE impact on my son's life. It is truly a medical miracle. If you know any child with Delta F508 mutation, please have them get in touch with Vertex! I would give the movie 10/10.